Wednesday, March 8, 2017

There's An App For That


Scripture of the Day: 

Isaiah 58: 8
Then shall thy light break forth as the morning and thy health shall spring for the speedily: and thy righteousness shall go before thee, and the glory of the Lord shall be thy reward. 



I was posting on my Facebook page, encouraging my friends and family to schedule their mammogram and do the self-check. So I went to google to find a site explaining exactly how to do those self checks. I discovered that there is an app for that. It tells you how to do the self exams and reminds you to do it. For those who live by their phones, this is perfect for you.


I'd like to send out a special request for my friend Glenna. She is going through a rough time right now. Please pray for her and lift her up as well as all the others on my prayer list page. Thank you.

If you are making this journey as I am, may God bless you with his healing touch. I know He loves you.



Thursday, February 23, 2017

Celebrating Birthdays

Scripture of the Day:

Give them beauty for ashes, the oil of joy for mourning, the garment of praise for the spirit of heaviness.
Isaiah 6:1-3



Celebrating Birthdays

I recently celebrated my 64th birthday. But I look at it as celebrating my 6th birthday as a survivor. I have to say that some of those birthdays I actually felt like celebrating and some I found depressing. I don't want to minimize anyone's progress, but I'd like those who haven't gotten this far that you still have a ways to go. On those tough days, it's just that if I had my 'drathers, I'd rather this had never happened. 

Can you have those bad days? Sure you can. It just happens. I don't seem to have complete control sometimes. But it doesn't last, at least, not for me. 

So keep the faith and go out and celebrate that day and be thankful that you get to celebrate another one. ..even if it's not the greatest one you ever celebrated.

I found the article below that lets you know that all of our birthdays take on a new meaning.  And congratulations for being able to celebrate another.

The link to this article is below and you can go to it if you want to research the topic a little more.  



On the Meaning of Birthdays to a Cancer Survivor (aka “My first 49th?”)

When I was growing up, birthdays were always of tremendous significance in my family.  My sister and I both looked forward to our own special days all year: we loved the presents, the attention, the parties, everything about it.  But maybe most of all, we loved the excitement of finally seeing the theme my mother chose for our birthday cakes.  She always made complex cakes of her own special design, and she outdid herself every year.  We still talk about the most memorable one: the “Bucky Dent” cake, designed to look like my sister’s large blue, buck-toothed stuffed rabbit that she’d named in honor of the (very!) handsome Yankee short stop.  As a kid, I also loved that my birthday came just a few days before Halloween.  I was a painfully shy little girl, but I loved dressing up to be someone (or something) else, the spookiness of it all, seeing all the other kids’ costumes in the neighborhood, and eating far too much candy for several days.
But I figured that when I “grew up,” birthdays would become just another day.  And that’s definitely the case for my husband.  As one of 9 kids in an Irish-Catholic family, his parents (understandably!) didn’t have the time or energy for big birthday celebrations, particularly by the time Marty arrived (the 8th child and youngest boy).  He does reminisce about how his mother would let the kids choose their favorite meals for their birthday dinners and how that was always such a treat.  But now he encourages me NOT to get him anything for his birthday (I don’t listen) and, last year for his 50th, NOT to do anything, let alone anything special (I didn’t listen).  And just this week, when I asked if he minded that I’d be attending a grant review panel on the day of his birthday, he started laughing … “Oh my God, Deb: I’d be absolutely devastated! “Nuf said. ðŸ™‚
But the fact is that every year when the calendar reaches October 27th again, I take time to reflect–and to appreciate just how fortunate I am to BE here.  Most young adults still have at least a residual sense of invulnerability that’s hung on from childhood and adolescence:  from simply not understanding the concept of death to not being able to comprehend one’s own death, a feeling that death “can’t happen to me.”  Yet at the age of 22 years, I lost my sense of invulnerability for a lifetime.  It literally was a black-and-white moment, during which my childhood doctor and I were looking at my chest x-ray, showing one lung that appeared black (as it should have) and the other covered entirely in a frosty white.  The cause, stage III Hodgkin’s lymphoma–a diagnosis that if received just a decade before may very well have meant that I wouldn’t be celebrating many more birthdays.
And on Halloween night this year, my memories returned of another moment that similarly divided time for me.  Exactly 10 years ago, 4 days after my 39th birthday, I learned that I was facing the real possibility of not being here to celebrate my 40th.  On that Halloween day in 2003, I was walking up the stairs to my new cardiologist’s office, fighting the pain gripping my chest and stopping every few seconds to catch my breath. Once I reached the office, I carefully settled myself into a chair in the waiting room and watched in a daze as members of the office staff went about their business, all while dressed in Halloween costumes.  Normally, I would have gotten a kick out of that.  But not on that day.  I was still trying to catch my breath when the technician who had performed my cardiac testing walked right over to me, put her hand on my shoulder, leaned over, and asked if I was okay.  She then clasped my arm warmly, smiled, and went to her next patient. She was in costume as well, a frightening one actually, but the fact that she obviously recognized my fear, comforted me, yet didn’t say, “don’t worry; everything is going to be fine”–that was one of the scariest moments of my life. And it wasn’t fine.  Instead, I learned that I had 90% blockage of one of my coronary arteries.  The cause: scarring and narrowing caused by my radiation treatment for lymphoma several years before.  And, as I’ve written about previously, because of the location of the blockage, I faced a terrifying decision–whether to proceed with an angioplasty, which presented the risk of another coronary artery collapsing and a heart attack during the procedure, or whether to go right to open-heart surgery for a coronary artery bypass graft.  When I later found myself asking the cardiologist whether I should be thinking about “getting my affairs in order,” I was shocked on so many levels: that I was actually asking this question, how truly surreal the situation was, and worst of all, to hear that the answer was “Yes.”
As a young adult cancer survivor (AYA), I know that the reality is a stark one for far too many of us.  According to the National Cancer Institute (NCI), unlike overall improvements seen with older adults and younger children, the survival rates for young adults with cancer have not improved in nearly 30 years. The lack of improved outcomes can be due to a number of factors, including delayed diagnosis (since many MDs may rarely consider the diagnosis of cancer in a young adult), lack of health insurance and limited access to medical care, receipt of treatment that may not be most effective for their cancers due to limited understanding of the biology and etiology of cancers in AYAs, and the unique supportive and psychosocial care needs that come with such a diagnosis at the juncture between adolescence and adulthood.  And of course, there’s the fact that AYAs face a substantial risk of developing serious late effects of their cancer treatment, including cardiotoxicity and second primary cancers–which, in my case, includes my breast cancer diagnosis at the age of 42 years, also thought to be secondary to my radiation).
So coming full circle, although it may seem childish, I treasure my birthdays because I’ve been given the gift of still being here.  This year’s was my 49th–and next year, I won’t be describing it as my “second” 49th.  I’ll be thrilled that I’m here for 50 and for every day before and after.
Meaning of Birthdays to a Cancer Survivor

Please add those on my prayer list page to your prayer list. If there is someone that you would like me to add, please let me know and I will do so.

If you are making this journey as I am, may God bless you with His healing touch. I know He loves you.

Wednesday, February 8, 2017

Tumor Markers


Scripture of the Day:

1 Corinthians 5:8
“We are confident, yes, well pleased rather to be absent from the body and to be present with the Lord.” 




What are Tumor Markers

I've been trotting right along in my breast cancer recovery, hitting all the mile-markers I'm supposed to be hitting without any setbacks until last October. Every 6 months, up until that point, I saw my oncologist. In each appointment, blood was taken to be tested for I don't know what. 

But last October, I received a call the next day from my oncologist and she said that some markers in my blood test was pretty high. So I went back in and was retested.  She said they were still pretty high, but that we'd just keep an eye on them and could I come back in a few months...like I was going to say no!! She explained that the specific thing that was high were my tumor markers. She gave me some information, but we were on the phone, so we didn't talk long. So I looked it up.

What I found indicates that the tumor markers will tell you if there is a possibility of cancerous cells in your body. So I was pretty nervous. I did speak with my breast surgeon at one of his checkups and he said that it may have to do with my ovaries. 

All my appointments seem to fall together at approximately the same time. So my next appointment was with my OB=Gyn. She did a blood test for ovarian cancer and ruled it out. But I'm still pretty nervous.

Well, Monday, I had the test with my oncologist redone and it came back normal. What a relief! So, I have now graduated to once a year visits to see her. 

I want to share the following article about tumor markers. This will be excerpts. If you want to read the whole thing, the link will be at the end of the page. 

What are tumor markers?

Tumor markers are substances that are produced by cancer or by other cells of the body in response to cancer or certain benign (noncancerous) conditions. Most tumor markers are made by normal cells as well as by cancer cells; however, they are produced at much higher levels in cancerous conditions. These substances can be found in the blood, urine, stool, tumor tissue, or other tissues or bodily fluids of some patients with cancer. Most tumor markers are proteins. However, more recently, patterns of gene expression and changes to DNA have also begun to be used as tumor markers.
Many different tumor markers have been characterized and are in clinical use. Some are associated with only one type of cancer, whereas others are associated with two or more cancer types. No “universal” tumor marker that can detect any type of cancer has been found.
There are some limitations to the use of tumor markers. Sometimes, noncancerous conditions can cause the levels of certain tumor markers to increase. In addition, not everyone with a particular type of cancer will have a higher level of a tumor marker associated with that cancer. Moreover, tumor markers have not been identified for every type of cancer.

How are tumor markers used in cancer care?

Tumor markers are used to help detect, diagnose, and manage some types of cancer. Although an elevated level of a tumor marker may suggest the presence of cancer, this alone is not enough to diagnose cancer. Therefore, measurements of tumor markers are usually combined with other tests, such as biopsies, to diagnose cancer.
Tumor marker levels may be measured before treatment to help doctors plan the appropriate therapy. In some types of cancer, the level of a tumor marker reflects the stage (extent) of the disease and/or the patient’s prognosis (likely outcome or course of disease). More information about cancer staging is available on the Staging page.
Tumor markers may also be measured periodically during cancer therapy. A decrease in the level of a tumor marker or a return to the marker’s normal level may indicate that the cancer is responding to treatment, whereas no change or an increase may indicate that the cancer is not responding.
Tumor markers may also be measured after treatment has ended to check for recurrence (the return of cancer).

How are tumor markers measured? 

A doctor takes a sample of tumor tissue or bodily fluid and sends it to a laboratory, where various methods are used to measure the level of the tumor marker.
If the tumor marker is being used to determine whether treatment is working or whether there is a recurrence, the marker’s level will be measured in multiple samples taken over time. Usually these “serial measurements,” which show whether the level of a marker is increasing, staying the same, or decreasing, are more meaningful than a single measurement.
...Can tumor markers be used in cancer screening? 
Because tumor markers can be used to assess the response of a tumor to treatment and for prognosis, researchers have hoped that they might also be useful in screening tests that aim to detect cancer early, before there are any symptoms. For a screening test to be useful, it should have very high sensitivity (ability to correctly identify people who have the disease) and specificity (ability to correctly identify people who do nothave the disease). If a test is highly sensitive, it will identify most people with the disease—that is, it will result in very few false-negative results. If a test is highly specific, only a small number of people will test positive for the disease who do not have it—in other words, it will result in very few false-positive results.
Again, this is not the complete article. It went into some information in depth. If you want to read the whole article please click on the above link.
Please take a look at my prayer page and add these people to your prayer list. Let me know if you would like to add a name.
If you are making this journey as I am, may God bless you with His healing touch. I know he loves you.

Tuesday, January 31, 2017

Is Refusing Cancer Treatment a Selfish Act?

Scripture of the Day:

Malachi 4:2
But unto you that fear my name shall the Sun of righteousness arise with healing in his wings; and ye shall go forth, and grow up as calves of the stall.



This is a hard topic to address. If it were my parent, daughter, aunt, sister...I'd definately want to butt in and give my opinion and be determined to help them make the "right" decision. But I know I can't. It's their decision and no one elses. 

My family did not have the issues that some families have with the decisions of the breast cancer patient. I've said this repeatedly...I went after this very aggressively. I did ask my children how they felt as I was going through this. One of them said that they took their attitude from the one I was showing. Yes they were upset, but since I wasn't falling apart (in public), they wouldn't either. 

But not all breast cancer patients are that decisive and aggressive. I've talked to family members who are very scared for the decisions their loved one is making. 

I found the following question and the answers that were given when asked. I have posted the answer to the question from the Expert. The link to this article is at the bottom of the page and if you go to it, you will find opinions from family members, etc. all over the spectrum. 

I know it's hard for some of you when going through this. This time more than ever is a time to be honest with each other. Maybe your loved one has a perfectly good reason for her/his decisions. Maybe they can't see what you are feeling. This is definately an individual's decision even though it effects the whole family.

Is refusing cancer treatment a selfish act? 


Expert Answers

Kenneth Robbins, M.D., is a senior medical editor of Caring.com. He is board certified in psychiatry and internal medicine, has a master's in public health from the University of Michigan, and is a clinical professor of psychiatry at the University of Wisconsin-Madison. His current clinical practice focuses primarily on geriatrics. He has written and contributed to many articles and is frequently invited to speak on psychiatric topics, such as psychiatry and the law, depression, anxiety, dementia, and suicide risk and prevention.

A decision about whether to accept treatment for cancer is a personal matter, and there is no right or wrong. One must start by carefully weighing the potential risks of the treatment and the potential benefits of the treatment. The person with cancer must ultimately decide which choice is in their overall best interest. "Selfish" has a negative connotation, as though the person with cancer is inappropriately thinking of himself or herself instead of others. In this case one must think of oneself, because it is ultimately the person with cancer who will have to deal with the consequences. One of the factors to consider, however, in addition to the risks and benefits of the potential treatment, is the effect either decision will have on family members and close friends.
If you are the person with cancer and you are seriously considering a choice to refuse treatment, I would encourage you to speak with the people closest to you about it. It is possible they will feel hurt, believing you are choosing to die rather than to spend time with them. It would likely be very helpful to them if they understood how and why you made your decision, or what it is you are wrestling with. It is even possible such a discussion will give you a new perspective that leads you to change your mind. This is a situation where a mental health professional may be invaluable. Such a person could help facilitate a discussion between you and the people you are concerned about, and help you each to understand what the other is experiencing. Hopefully this will lead to you supporting each other through this very challenging time.
Please take a look at my Prayer page and these people to your prayer list. I believe in the power of prayer and these people could use it. 
If you are making this journey as I am, may God bless you with His healing touch. I know He loves. You

Monday, January 23, 2017

Survivor's Guilt 2

Scripture of the Day:
“We are confident, yes, well pleased rather to be absent from the body and to be present with the Lord.”
1 Corinthians 5:8



This is the 2nd time in a week that I have used this candle. Yesterday a friend and classmate lost his battle with cancer.  I don't want to diminish his loss, but I find myself asking, "why him and not me". I thank God daily for my survival, but why them and not me. So I looked searched again about survivor's guilt and found another article. It describes me to the letter. Although, I have learned to let go, if you are experiencing this with your own cancer, this article may help. There are several links in the article that may be more specific to your needs. You will have to go the article and find those links. The link to this article is at the end of the page. 

Please see the memorial page and these people and their families to your prayer list or chains. If there is anyone you'd like to add please get in touch.

The mental and emotional challenges of surviving cancer

Ann MacDonald
Ann MacDonaldContributor, Harvard Health
One of my closest friends is a two-time breast cancer survivor. Terry (as I’ll call her) has been cancer free for eight years—long enough to be considered cured (generally defined as being in remission at least five years). But in no way is she “free” of cancer. Every abnormal blood test, every callback for another mammogram terrifies her so badly she can’t sleep until doctors rule out a recurrence. In some ways, the ongoing psychological and emotional challenges she faces have been worse than the physical treatments she endured.
I thought about Terry when I read the latest government statistics on the number of cancer survivors in this country. Nearly 12 million Americans—4% of the population—are still alive after a cancer diagnosis.
In many respects this is terrific news, and a testament to improved diagnosis and treatment options. But survivorship comes at a psychological price. We discussed these challenges at length in the  Harvard Mental Health Letter, but here’s a quick look at some of the major issues.
“Damocles syndrome.” According to Greek legend, once Damocles realized that a sword was dangling precariously over his head, he could no longer enjoy the banquet spread in front of him. In the same way, the specter of cancer hangs over some cancer survivors. They can become emotionally paralyzed and have a hard time deciding to get married, change jobs, or make other major decisions.
Fear of recurrence. Given cancer’s potential to lay dormant for a while and then spread (metastasize), cancer survivors often experience ongoing fear of recurrence. Follow-up medical visits, unexplained pain, or even sights and sounds they associate with treatment can trigger bouts of anxiety and fear that are as debilitating as those that occurred during cancer treatment.
Survivor guilt. Although happy to be alive, cancer survivors may feel guilty that they survived while fellow patients they became friendly with during treatment or as part of a support group did not. (Early after a diagnosis of cancer, people first ask, “Why me?” When survivors think about those who have died, they tend to ask, “Why not me?”)
Recognizing these challenges, the Institute of Medicine’s Committee on Cancer Survivorship explored ways to help people rebuild their lives after treatment ends. You can read the report, “From Cancer Patient to Cancer Survivor: Lost In Transition,” for free online or buy it from the National Academies Press.
Given that one in three Americans will face a cancer diagnosis at some point in their lives, living with cancer is a topic that touches all of us. If you are a survivor, or know someone who is, these Web sites may be useful.
If you have suggestions for dealing with the challenges of cancer survivorship, please let us know in the comment section.

If you are making this journey as I am, may God bless you with His healing touch. I know He loves you.

Wednesday, January 18, 2017

Another Battle is Done

    Scripture of the Day:
    “Let the one who is thirsty come; and let the one who wishes take the free gift of the water of life.”
    – Revelation 22:17




Another has lost her battle with Cancer.Please keep the family of Ellie in your prayers.

If you are making this journey as I am, may God bless you with His healing touch. I know He loves you.

Thursday, January 12, 2017

Acupuncture Seems to Help Ease Pain